Create An Epilepsy Care Notebook:
Care Plan & Seizure Action Plan
A patient’s basic personal and medical information, including a Seizure Action Plan, which shows how to deal with a seizure in emergency situations.
[Care Plan & Seizure Action Plan PDF]
[Seizure Observation Record_PDF]
Medical ID Bracelet or Card
A medical ID bracelet or wallet-sized card are available to show a reliable medical summary for emergency situations. The Medical ID card is a safe and reliable back up for reducing potential allergic reactions/interactions, intolerances or side effect profiles.
[Medical ID Card]
A seizure tracking record
[Seizure Log English/Español PDF]
A list of current and former medications and side effects
[Medication List English/Español PDF]
An organizational section where you should keep your important, most recent medical records.
WebEase stands for Epilepsy, Awareness, Support, and Education. It is a free, web-based self-management program for adults with epilepsy. With WebEase, adults with epilepsy set goals and create a personal plan to improve or maintain skills.
Mississippi Neurologist Directory
A physician and patient relationship is a personal relationship that is best determined by each individual. This directory will be used as a resource to make sure you get the quickest treatment possible.
Smart Monitor provides monitoring and tracking solutions for people with chronic health conditions. SmartWatch is an easy-to-use, non-invasive wristwatch that continuously monitors movements and instantly alerts connected family members and caregivers upon the onset of repetitive, irregular shaking motion.
Seizure Alert Dogs
For many living with certain types of seizures, seizure alert dogs having improved their quality of life. A seizure alert dog has the ability to warn a person of a seizure moments or sometimes hours before the person has clinical signs of a seizures. Obtaining a seizure alert dog is a very lengthy process and one that should be determined by your doctor and yourself. These are not just regular pets they are training to work for the individual as well.
[Magnolia Paws for Compassion]
[4 Paws For Ability]
If you have been diagnosed with PCDH19 Female Limited Epilepsy or are a female with difficult to control seizures or have a daughter with difficult to control seizures. Talk to your doctor about a PCDH19 test.
Social Security & Disability Benefits
The federal government offers financial assistance and health insurance to people with epilepsy who qualify.
- Social Security Administration (SSA) at 1-800-772-1213
- National Organization of Social Security, Claimants’ Representatives (NOSSCR) will provide a referral to a local attorney.
- Disability Benefits Center provides a resource link on information on applying for Social Security Disability benefits with epilepsy.
- Medicaid and Medicare
The Penry Travel Assistance Fund provides assistance to help individuals cover the cost of travel for specialized care outside their home area. For an application & eligibility guidelines, visit epilepsy.com/penryfund or contact the Epilepsy Foundation of America’s Epilepsy & Seizures 24/7 Helpline at (800)332-1000, option 1.
Do you have a child with epilepsy?
Epilepsy and My Child is a website designed for parents with input from parents. This comprehensive website contains information on the following topics: About Epilepsy, Just Diagnosed, Living with Epilepsy, Treatment, Raising Awareness and Resources and Connections.
Click here for more information on Project Access, a national initiative to improve care for children with epilepsy.
Special Needs Parenting Handbook
Raising a child with special needs can be difficult, but from that difficulty is born a greater appreciation for the human spirit. This “handbook” offers resources for parents at every stage of the journey of caring for their special needs children. From learning more about special needs to picking a school, planning a financial future, and getting past the bullying and discrimination that so often plague people with special needs. http://phdinspecialeducation.com/special-needs-parenting-handbook/
A number of useful tools for families.
- [Epilepsy Medications English PDF]
- [Medicamentos Epilépticos Español PDF]
- [First Aid Charts English/Español]
- [Doctor’s Visit Notes English Español]
- [Parent_Toolkit-Spanish PDF]
- [Epilepsy_Know_the_facts PDF]
- [Epilepsy_Toolkit PDF]
- [Parent_Questionnaire PDF]
- [Parent Questionnaire_in_Spanish PDF]
- [A_Child’s_Guide_to_Seizures PDF]
- [Como Reconocer Los Sutiles Sintomas de La Epilepsia Español PDF]
- [Hechos sobre los ataques o convulsuiones Español PDF]
- [Kids and Seizures know the hidden signs PDF]
- [Managing Epilepsy & Seizures]
- [Managing Epilepsy & Seizures – Spanish]
- [Understanding the Behavioral Aspects of Epilepsy PDF]
Medications for Epilepsy
Seizure Medication List
Patient and Medication Assistance Programs
For short term medication assistance, EFM offers those who have no insurance or drug coverage through medicaid a one time a year assistance with medication through the Dr. Victor G. Dostrow Emergency Medication Fund.
The Epilepsy Foundation of Mississippi has partnered with the Discount Drug Network to help ensure you are getting your prescription’s at the lowest possible price. lick here . For more information on how to use the card click here.
Other resources for medication assistance are: