We are so thankful our wonderful support group and for the people who have made it their job to help children like Natalie.

On September 13, 2010, my husband and I welcomed our beautiful daughter Natalie into the world.  At only four months old, we began to notice a couple of things that bothered us.  One being that Natalie could not hold her head up.  Also, she was experiencing these random episodes where her eyes would begin to jump up and own very rapidly.  We voiced our concerns to her pediatrician and were told that if at her next check up Natalie was still having these problems that we would be referred to a professional.  In February 2011, we visted a Pediatric Eye Doctor who examined Natalie and told us that she suffered from Optic Nerve Hypoplasia.  We were told that there was a chance that Natalie could be blind.  As if that wasn’t bad enough, a few weeks later we were sent to Le Bonheur to meet with a Pediatric Neurologist.  Natalie was given an EEG and the results showed that she was having seizures.  That same day we were admitted and ended up staying a week at Le Bonheur for more testing.  After an overnight EEG, MRI, CT Scan, Spinal Tap and what seemed like a never ending round of Q and A, Natalie was diagnosed with Infantile Spasms.  We were given a prescription for twice daily injections of Acthar Gel but after about a month or so we were switched to Keppra.  Natalie was seizure free for several months.  In January 2012, she had her first seizure since June 2011.  Today, Natalie is 20 months old and perfectly healthy.  However, because of her seizure disorder, Natalie’s development has been severely delayed and she is currently working with five different therapists.  We are so thankful for our wonderful support group an for the people who have made it their job to help children like Natalie.  I have been searching for a way to give back and I came across the Epilepsy Foundation of Mississippi.  I was taken back by the stories of others who are suffering and it makes me happy to know that if Natalie has to continue living with Epilepsy, that there are people who can not only help her but help us help her.


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